Author Archive

Evolving Learner: Shifting from Professional Development to Professional Learning From Kids, Peers, and the World by Lainie Rowell, Kristy Andre, and Lauren Steinmann

Monday, August 31st, 2020
Evolving Learner

Evolving Learner: Shifting from Professional Development to Professional Learning From Kids, Peers, and the World (©2020) by Lainie Rowell, Kristy Andre, and Lauren Steinmann focuses on how teachers need to learn from their students, their peers, and the world at large. They also need to be allowed to have a voice and choice when it comes to their professional learning rather than be exposed to old school one-size-fits-all professional development.

Introduction

  • The main idea is to move from traditional one-size-fits-all seat time professional development to innovative learner-driven personalized deliverables. An organization called Learning Forward developed Standards for Professional Learning and this book is a practitioner’s guide to mastering them. As you learn there are things that you have to unlearn, which is difficult. You also have to change your role from expert to learner and to not fear failure. Andragogy deals with the methods or techniques used to teach adults. 1. Adults should be involved in the planning and evaluation of their instruction. 2. Experience, which includes mistakes, provides the basis for learning activities. 3. Subjects should have immediate relevance and impact on their job or personal life. 4. Adult learning should be problem-centered rather than content-oriented.
  • While there are many cycles of inquiry with similarities and differences, the authors decided to create their own. Their essential pieces are Focus, Learn, Refine, and Reflect. This cycle is revisited throughout the book. This book is about relationships for learning through a cycle of inquiry. Teachers who have experienced online and blended learning have higher aspirations for leveraging technology. With technology, it is much easier to differentiate learning. Social-emotional learning should also be integrated rather than separated from any learning.

1. Learning from Kids: Honor the Learner

  • We need to shift from teacher-driven to learner-driven and by learner, we mean kids and adults. While students are engaged in the learning cycle of focus, learn, refine, and reflect based on content, teachers are engaged in this same cycle regarding their practice. Students should be seen as clientele. (Doug: I prefer customers.) Teachers need to respect each student’s ideas, experiences, and perspectives in order to serve them better. In other words, they need to constantly learn from the students.

Leveraging the Most Abundant Resource in Our Schools

  • Students are the most underutilized resource in a classroom. They are critical to personalized learning for teachers. To learn from kids probably requires a change in mindset for most teachers. One survey of middle school students that asked “how do you feel in school each day” gave the top three responses as tired, bored, and stressed. The authors think that this may be because they don’t feel seen and heard. Making learning truly reciprocal may solve this problem. There an extended response here from Adora Svitak. She gave a TED Talk at the age of twelve on the topic of what adults can learn from kids that now has over five million views The response here was given when she was twenty.

What Are They Thinking? Making THinking Transparent to Tailor Instruction and Promote Teacher Inquiry

  • Thanks to tech tools it’s possible for a teacher to ask a question and see everyone’s answer. This can greatly aid the ability to do formative assessments. Without such tools, you are likely to get the same kids answering all of the questions. When using these tools be sure to put lesson design first and not the tool. This approach will also give students more processing time as it lets the teacher assess prior knowledge.
  • As students go through the grades they ask fewer questions. One way to fight this is to use the 5E’s approach. Here we start with Engaging students by asking an open-ended question. You can use a Word Cloud tool to create an illustration that students can use to Explore the topic further. The Explain part of the lesson can address unanswered questions. Further Elaboration comes next followed by Evaluation. Since learning is messy don’t be surprised if you move back and forth between these steps.
  • Next the focus in on students formulating questions. First, the teacher comes up with a question focus contained in the curriculum. Students then independently produce questions without initial judgment of a question’s quality. They prioritize closed-ended and open-ended questions, plan the next steps, and reflect. Questions can even be used as part of assessments as creating questions is a higher-level thinking activity than answering them. The nature of the questions can help the teacher spot misunderstandings and provide opportunities to improve instruction. Peer instruction can also help as the teaching peer is dealing with something recently met. By circulating during this process teachers can learn new ways to explain concepts. You can even have students take tests in pairs after they take them as individuals and compare scores.

Ownership of Learning for All: Shifting From Students Who Consume Content to Learners Who Create Content

  • Here we encounter the concepts of miinimally invasive education (MME) and self-organized learning environments (SOLEs). They are based on the work of Sugata Mitra who set up computer kiosks in poor neighborhoods starting in New Delhi, India. When he returned he was amazed at what the children had taught themselves with no help. Certainly these children owned their learning. We then hear about High Tech High, a charter school in San Diego, CA that accepts students via a lottery. They operate on the principles of equity, personalization, authentic work, and collaborative design. The only tech-based question they ask prospective teachers is “Are you willing to learn from your students?”
  • One author tells a story of how she took over a kindergarten class and gave each student a computer tablet. She gave them four minutes to figure out the features of the drawing app and then teach them to the rest of the class. Then they had to show a number using manipulatives, take a picture of it, bring the picture into the drawing app, and annotate it. The vast majority had no trouble and those that did watched a peer and completed the task. Their teacher was amazed. This activity leveraged the learners in the room and produced artifacts that could be used to analyze the progress of each student. Students enjoyed the challenge, the chance to be creative, learning something new, and collaborating as they overcame their fear. Note that students here had voice and choice.
  • Now we look at a number of specific learner-driven practices. Included are project-based learning, competency-based learning also known as mastery or performance-based learning, blended learning, and universal design for learning. There is an interview with Eric Marcos, a math teacher from Santa Monica, CA who’s website is MathTrain.Tv. He started making video tutorials for his students who soon wanted to make their own. In a way, they put him out of business. Among the many benefits are other family members learning math at home from student-generated tutorials.
  • The rest of the chapter focuses on social-emotional learning (SEL) with short interviews of two teachers who use InspirED to help their students with this important learning. In the end, there are resources that help you internalize the key concepts as well as resources you can read, watch, listen to, and explore.
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Making the Wait for a Donor Heart Bearable by Steve Suto – Part 3

Saturday, August 29th, 2020

Checklist
Making the Wait for a Donor Heart Bearable by Steve Suto tells the story of waiting six months in the hospital for a heart transplant. He talks about how support from staff, family, friends, and fellow transplant candidates helped him stay strong and make it to the big day. If you have suffered setbacks you will appreciate this even if you are not a transplant candidate. Here are the links to part 1 Reflections of a Heart Transplant Survivor and part 2 How to Qualify for a Heart Transplant.

Making Your Grateful List and Checking It Twice

Here is a checklist of what I was grateful for when I started my wait in the hospital for my donor heart. If you or a loved one are waiting I hope your list is at least this long.

First: I had a strong support group. (Thanks for your part Dr. Doug.)
Second: I had great insurance.
Third: I had the best hospital, or at least I thought it was the best.
Fourth: My wife Carol had a local bed that was actually cheaper than commuting 90 miles one way and paying for tolls and parking.
Fifth: I have faith in the United Network of Organ Sharing (UNOS). Nationally, UNOS prioritizes and objectively allocates donated organs by need and wait time.
Sixth: I’m sociable and I would try to encourage and support the others like me who were waiting for a donor.
Seventh: Carol kept her infectious sense of humor and knew where it was needed.

In my life, I’m sure I’ve spent over eight months in different hospitals for various procedures; which includes the six and a half months I waited for and my subsequent recovery from my heart transplant. Before this I had two hip replacements, with one hip restructure follow up, arthroscopic knee and elbow surgery, reattachment of an Achilles tendon, hernia surgery, and two pacemakers installed and removed. I also had various overnight and day procedures, heart tests, and an overnight observation from a reaction to an allergy shot. Also, after recovering in hospitals, I spent even more recovery time in nursing homes.

Room Service

My best advice from all of this experience is that there is no greater luxury nor substitute for a private hospital room. I also learned that nurses are in the nursing profession for the right reasons. In the case of the University of Rochester (U of R), their nursing staff had a number of people who chose nursing after careers as doctors, news editors, police officers, shop foremen, nurse assistants, and more.

Nurse Pics
The most profound thing any nurse told me was that their job was to help me to get my life back. Additionally, they are giving a gift with no other conditions except that you return to the life you led. This attitude has done more than I can say when it comes to any survivor’s guilt when you overthink the reality that you know someone must die for you to live on. Going on with your own life fulfills your part in this deal.

If you are thinking about becoming an organ donor (Visit DMY.org to sign up.) I can not overemphasize that you need to make your wishes known to your family. Even though you have made known your intention of being an organ donor, your family can still object and override your intentions. Please make it clear to your family and your doctors you want to be an organ donor. In my previous references to my gratitude for donors, I also expressed my gratitude to the donor families. I hope that I am doing this one more time here.

After waiting in the hospital for over a month I started to figure some things out. We had options of private and double-occupancy rooms. If you had a private room for your wait, you could lose it if another heart patient had a greater need for the room. The term semi-private is a misnomer when your roommate is waiting for or recovering from an LVad (Left Ventricle Assist Device) because you are on such different schedules and treatments and you will constantly be disturbing each other.

After I had about a dozen roommates getting LVADs I started to forget names. I made an agreement with another patient who was also waiting for his donor that we would be roommates until one of us had a new heart. That way our treatments and schedules were not conflicting or disturbing each other.

Being social, one of the first questions your fellow patient’s ask each other is their blood type. Whether a donor’s heart is acceptable to you depends on your blood type. Positive or negative’s not a factor. Type O blood can only receive type O organs but everyone else can accept a type O organ. A accepts A and O, B accepts B and O, and AB accepts any A, B, AB, or O blood types. Therefore, type O patients generally have longer waits.

Pole People

The Pole People

Those of us who were waiting for transplants were known as “The Pole People”. We were mobile, although restricted to the transplant floor area. We needed to be constantly monitored by various machines, and we needed to have our medication intravenous injection pumps hooked up and mounted on poles with wheels. Everyone had their permanent and seasonal decorations for their poles. No matter how good I thought I was getting at moving with my pole, my big toe kept getting in the way when I tried to move fast.

If a nurse asks you if you need one of these machines on your pole not hooked up and you are not using it; do not fake pain when they disconnect the machine. One particular nurse was a former police officer and told me about a perfect crime where disappearing ink disappears at room temperature and most patients can’t tell if Do Not Resuscitate (DNR) is stenciled on their forehead in disappearing ink. I was scared straight. I’m assuming justifiable homicide is still on the books.

The transplant ward had a waiting room with a Macintosh computer, exercycle, and a treadmill. Someone lost the treadmill key but I knew a magnetic hook would work in its place so I walked every day on the treadmill and watched old TV programs on Youtube. I could walk a mile in less time than a Muppet Show episode took. I was also walking without having to push that *#@!pole. My hands could swing freely and my big toe could relax for a while. We also had the areas on the floor where we could move around in measured distances for putting in measured milage. Former marathoners like my friend Fred put in more miles than I did.

The computer introduced me to Youtube music videos. Youtube is the closest thing I know of to a time machine. When you get on Youtube, all of a sudden it’s two hours into the future. Through following my curiosities I found out that the closest thing to my record collection is covered pretty much by Outlaw Country. Getting back to the Grateful Dead, I followed the continuing efforts of their former singer Joan Osborne (2003 tour) and found her singing with The Funk Brothers, (Motown’s house band) on a revival of the temptation’s “What Becomes of The Broken Hearted.” I had now found my go-to emotional support song for my unsure future waiting for a donor.

Everyone Needs a Support Group

As a mutual support group, a core of six of us “A” candidates started planned nights where we would get together and watch movie DVDs or play board games. Fred, who had type O blood and knew he was in this for a long wait, acquired a large locking cabinet and stocked it with donated books for our floor’s patients and persuaded the local library outreach to give a library card to those of us who were waiting. Fred’s father was a minister and he and his wife were teachers. They even held book discussions and recommended so many great novels and stories of people who endured hardships and survived like “Unbroken” and “The Book Thief.” Fred became a heart transplant candidate after the side effects of his cancer treatment ruined his heart. Today he’s doing well and doing some limited running.

Carol, who was now a retired teacher, had a friend and co-teacher who helped start me on reading. This teacher might not know how great the gift of a book snowballed. I did not know I was going to learn to like reading as my newest passion. In the past, Carol helped me overcome my learning problems and I went from a C undergrad science-education student to an A-minus student in Accounting. In the past, I took and passed college courses without buying the books because I had problems reading them. Before this hospital wait, there is no way I would have predicted I would read over 50 books while waiting.

We had heart transplant survivors (who lived close enough to the hospital) who would stop by and help us with favors and emotional support. One of these guys was a former professional hockey player who brought a stethoscope when he met the family of his donor. I wasn’t surprised to see him on the Donate Life Float in The Tournament of Roses Parade. Another one of these good people told a story about how he told his wife that if he got his heart he would give his wife anything she wanted. He gave her a puppy. Carol heard this and said, “I want a pony with about 300 of them under the hood of my Mustang convertible.” Incidentally, I was good to my word. It will finally be paid for by this October.

Healthy Heart

The Dry Run and Bigger Setbacks

One of the disappointing emotional setbacks we all faced was called a dry run. This is when UNOS tells the hospital they found a match for a patient, the hospital sends a representative to inspect, stop, and restart the donor heart, and ultimately transport this donor heart back to the hospital. You are being prepped for the operation when the hospital representative is away vetting this donor organ. Any time during your prep, you might find out that this potential donor organ did not pass inspection. I was one of many who endured a dry run. A nurse told me not to despair as they will just find me a better heart.

On November 24th, 2013 another potential donor’s heart was located. A Nurse Practitioner told Carol she was returning on the hospital’s Lear Jet in two hours with this better heart. The Chinese born anesthesiologist knew the words to Pink Floyd’s “comfortably numb” as we sang together before I went to sleep. The nurses who took offense to my pole decorations, (the Pole Dancers I cut out of the Target underwear adds) had this pole cleaned off before I was out for the count.

I was luckier than so many of those who waited with me. Some of us had their ICD’s defib them with a painful shock keeping their hearts beating long enough to finally get their new heart. Some had to wait more than the six months I waited. Some were hooked up to a mechanical heart about the size of a shopping cart and some of these patients were never were matched to a donor. Some picked up infections that disqualified them so a donor organ went to someone else. Some waited and never were matched to a donor. I’m not equipped to handle this kind of heartache yet when I visit the transplant ward I see so many mutually happy and familiar faces still working there. Some of these faces were the faces of pallbearers in funeral processions of those who did not get their hearts or people who died of unforeseen complications post-op.

Life Isn’t Fair, But You Already Knew That

Before I started my wait you could have quoted me more than once when I said “if life was fair; I’d be shorter, poorer, and have had fewer opportunities for an education.” In bad times I have learned to count my blessings. Hospital food is never a profit center. The food service staff may exaggerate. Do not take their food quality, choices, or nutritional info seriously or personally. People do their best with the resources they have. Appreciate and enjoy the efforts of the good people who work hard in real restaurants. I offer a special thank you to the nurses who purchased refrigerators with their own money for each of the patients waiting for their donor organs. Leftovers from home trump hospital food every day except Tuesday, which every week featured a prime rib dinner. It was more of a bummer when you had a dry run on a Tuesday.

I offer one more special thank you to the nurse who went to Wegman’s and purchased my annual tradition of White Roses for Carol on our anniversary in October. The Florist sent the wrong flowers on a Friday and could not correct this until it was too late. This nurse wouldn’t take reimbursement nor take the wrong flowers home. Also, If you’re making Christmas decorations using cut out hand patterns on green paper to make pine leaves and branches, make time allowances for surgeons who will make several models of “their hands” before their final contributions to your artsy crafts projects.

The Psychologist will see through your BS when for Halloween you dress up in a bedsheet toga as John Belluci in “Animal House” and you tell him you’re dressed up as Hypocrites. Doctors will, however, let their sense of humor show upon occasions.

Praying

No Atheists in Foxholes or Transplant Wards

Finally, there is no place for atheism in my life. I wasn’t raised Catholic but thank You Saint Rita and Saint Maryann Cope. Thank you for grace, forgiveness, and redemption. Another who showed me support during my wait was NASCAR star driver and champion, Brad Koslowski, who sent me a signed poster. I worked at one time for a sponsor of his race car.

In my own way, I had support from my deceased father through his letters from WWII when he fought in the South Pacific. They told of his wait to get back to civilization. He described hardships and loneliness like not seeing an American woman for years. Dad considered it impolite if he sent a letter that was less than three pages. Next to him, I wasn’t going through anything close to his ordeal when he might face total defeat or victory away from friends and family. Today sending a Tweet or sending a text doesn’t appeal to my sense of decency after reading these thoughtful and sometimes funny, and always personal letters.

Next Saturday in my final installment, I pick up from being sedated on the operating table and take it home.

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Student-Centered Teaching / New US AI & Quantum Institutes / Emotional Support for Teachers

Friday, August 28th, 2020

15 Examples of Student-Centered Teaching – Student-centered teaching is simply the process of teaching with student needs ‘first.’ @terryheickedu @TeachThought

White House
White House announces creation of AI and quantum research institutes. Although higher education enrollment in AI-relevant fields like computer science has risen rapidly in recent years, few colleges have been able to meet student demand due to a lack of staffing. @Kyle_L_Wiggers @VentureBeat @asifrazzaq1988

Teachers need emotional support this school year. It’s not just students who are feeling stressed out during the pandemic–K-12 leaders should consider how to meet the social and emotional needs of their staff as well. @DennisWPierce @eschoolnews

Social/Mobile Media Education

How to Balance Between Personal and Professional Social Media – Here are basic yet helpful reminders about the benefits and risks associated with posting to social media. @rainbowdethclub @Entrepreneur @shane_barker @Entrepreneur

28,000 Year Battery

Learning

This company claims it can use nuclear waste to make batteries that last 28,000 years without charging. the more complete charge cycles a battery undergoes, the closer it gets to the end of its useful life. Manufacturers tend to warranty their batteries for eight years, or 100,000 miles. Wouldn’t it be great if manufacturers could guarantee their batteries for much longer? @mattbeedham @Shift_tnw @thenextweb @joerogan

Leadership/Parenting

How to Brainstorm When You Are Not in the Same Room – Now that many of us are no longer working together in the same space, we’re starting to get accustomed to new ways of doing things. But some processes are harder to translate than others, and brainstorming is one of the most challenging. @LollyDaskal

Inspirational/Funny Tweets

Fredrick Douglas@tim_fargo

Humor, Music, Cool Stuff

This Baby Rhino Doing Zoomies Around Her Pen Is The Most Adorable Thing You’ll See Today. Read more about the Auckland Zoo’s new rhino. @aucklandzoo @phil_goff

Recent Book Summariess

IEP/504

IEP & Section 504 Team Meetings…and the Law by Miriam Kurtzig Freedman

Grading and the Law

Grading, Reporting, Graduating…and the Law by Miriam Kurtzig Freedman

Boys and SEX

Boys and Sex: Young Men on Hookups, Love, Porn, Consent, and Navigating the New Masculinity by Peggy Orenstein

Emotional Intelligence 2.0 by Travis Bradberry & Jean Greaves

Reprogramming the American Dream: From Rural America to Silicon Valley – Making AI Serve Us All by Kevin Scott

The Knowledge GAP: The Hidden Cause of America’s Broken Education System and How to Fix It by Natalie Wexler

Upstream: How to Solve Problems Before They Happen by Dan Heath

Innovate Inside the Box: Empowering Learners Through UDL and the Innovator’s Mindset by George Couros with Katie Novak

Be sure to try the bottom right translate button for your favorite language or one you are trying to learn. If you don’t see it check your adblocking software.

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How to Qualify for a Heart Transplant by Steve Suto – Part 2

Saturday, August 22nd, 2020

This is part two of a four-part story written by a good friend who had a successful heart transplant in 2013. Here you can learn about what it takes to become an “A” candidate who lives in a hospital so that there is no wait when a proper donor organ becomes available due to a tragic situation for the donor. The first part is available here: Reflections of a Heart Transplant Survivor.

Patient and Doctor

Unplained Retirement

I was sitting in a hospital bed in Syracuse when my cardiologist told me that as of today I’m retired. This was not planned. I wanted to work until I turned 62. I would then get into shape, lose weight, and enjoy an active retirement as a snowbird between Syracuse, NY in the summers, and at my condo on the Space Coast in Florida during the winters. My cardiologist gave me another ending to my story.

There would be no reconciling our two different versions of my future. I admit I never was really listening. Years ago he told me to stop drinking. “Drinking was no good for my heart.” I did not immediately believe his science. I chose to listen to the conventional wisdom of “everyone says” which believes that glass or two of wine every day was good for your heart. A heart has two systems. In system one, most heart patients have circulation obstructions that can be mitigated by lowering cholesterol and losing weight. Wine helps this too.

It was too late when my doctor said my heart problems were from system two, the system that carries the signal throughout the heart and tells it when to beat. I had a pacemaker but the signal never made it through the damaged muscles in my heart carrying the instruction to beat and my heart was enlarged like a weak balloon. The ejection of blood was insufficient. New valves wouldn’t help because the surrounding tissue was too worn. This condition was aggravated by alcohol.

LVad

The Hot Potato Express

My local doctor was sending me to the University of Rochester’s (U of R) Strong Memorial Hospital in Rochester, NY (about 90 miles away) to get an LVad or an artificial left side heart pump. He was also dropping my case and handed it off to a Cardiologist from the U of R after telling me my liver was failing. The “hot potato case express” ambulance took me between cities and hospitals. I needed an ambulance because I had a portable system injecting milrinone into my veins to boost my heart’s output. I was going to be on this med till my transplant and there is no oral substitute.

When entering the heart transplant unit, it looked and sounded like a casting call for the original Star Trek and it was apparent that I was in the hands of world-class staff. After my tests, my new doctor informed me that I did not qualify for this LVad because the right side of my heart was too weak and additionally because of liver damage. (My former Cardiologist believed I was an alcoholic.) That meant I could not enter their transplant program. I was advised to try another transplant hospital.

I was sent home with my new portable life support system and a new inter-cardio defibrillator (ICD) enhanced pacemaker that was capable of administering a defibrillating shock. My wife Carol was taught how to refill my daily dose medicine injector system and change the batteries. I wanted to qualify for Rochester’s transplant program because their success rate was, by my reckoning, about 50% better than the national average. I concluded that because the U of R needed to keep their certifications and they had to meet the national averages; they only accepted less risky cases. They implied that other major transplant centers who do many times more transplants might accept cases the U of R would not.

Becoming a “B” Candidate

In order to qualify for the U of R transplant program, I had to correct the record. My heart could not support the LVad so a transplant was my only course of action. It was easy to quit drinking almost a year before these things developed to this point. I just decided to stop and I felt justified contesting this medical assessment of alcoholism. Fortunately, the liver specialist from the U of R in a different hospital in a different city took a biopsy of my liver and concluded that my liver damage was from a medication I was prescribed. After I agreed to accept counseling I was admitted to the transplant program as a “B” candidate.

An “A” candidate was a candidate living in the hospital waiting for a donor through the United Network of Organ Sharing (UNOS). A “B” candidate was living at home and had to be no more than two hours away from the hospital if a local heart was available. Statistically, this was not likely as out of approx 160 transplants at this hospital they had only done three “B” candidate transplants. Unless a Donor is local, UNOS will be the one who prioritizes and decides which candidate will receive an available organ for transplant. Rest assured that if you are a patient, your doctors do not know if you are an organ donor so be sure to let them know. For information about how to sign up for organ donation visit DMY.org.

Psychologist
My counselor had to convince me to convince myself that a disease is a condition that causes bodily damage and produces symptoms. After he “advised me” to attend AA meetings I could only admit to being “an alcoholic” because alcoholism is a disease. That factual diagnosis does not necessarily reflect on one’s character. (I stopped attending AA after I got my heart.) Since my transplant, I haven’t had anything more than a taste of rare or excellent wine and I’ll let someone else give that condition a name. Alcohol will probably ruin my new heart so I’m not drinking.

The Benefits and Downsides of Portable Life Support

While I was waiting to enter the program as an “A” candidate; I visited our local Social Security office. I believe that because I showed up with my portable life support system injecting my meds; my case for SS disability was approved within days. Also, when I caught an infection, I was temporarily ineligible as a “B” candidate so Carol and I visited our Florida condo for the first time in over a year. The benefit of bringing a portable life support system into SS was canceled by the hassle of getting a system with a liquid reservoir through airport security. They had me isolated to be cleared to board and we were almost late for our plane before they let us on. Incidentally, before CoVid I learned that wearing a face mask inspires an airport crowd to move over and allow you to pass unmolested.

The U of R also required me to be approved by a psychologist for the transplant program. My cardiologist sensing my terror told me not to play any games and just be myself. That part of qualifying was covered with a passing evaluation in spite of my answering questions about experiments with drugs when I was much younger. I should have not mentioned that when I was in my teens LSD was actually legal. Sometimes having a doctor younger than you is a good thing.

My cardiologist finally scheduled me for tests and admittance to an “A” candidate residence in the Hospital. I had everything I felt I might need for months of waiting in a hospital but my newest reason for rejection into the program was that some of my test numbers were too good. I attribute this to my daily exercising on my stationary bike. I guess their average candidates didn’t reflect the effects of exercise.

Accepted

Congratulations, You Can’t Go Home

The next time I was scheduled for an evaluation, Carol and I were not expecting admission so when they sprung on us that they weren’t letting me go home we had to call a friend to shut the crockpot off in our kitchen. All I had were the clothes on my back and now Carol had to put together everything I would need to live months in a hospital and carry it the long way up to the transplant ward.

The time frame from my finding out I was retired to when I became an “A” candidate for a transplant was six months (Oct 2012 to May 2013). As it turned out, the U of R Strong Memorial Hospital would be my home until December 2013. I was fortunate to have the means and support to achieve qualifying for this exceptional transplant program and in addition, I could correct the record on my tests and evaluations that would have otherwise disqualified me. Rejection from this program was not absolute. Persistence and faith were what I needed to prevail.

My next installment will be about what it takes to survive for months in a hospital and keeping a positive attitude when nothing is guaranteed.

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Reflections of a Heart Transplant Survivor by Steve Suto – Part 1

Wednesday, August 12th, 2020

Heart Transplant

Seven years ago I made a couple of visits to a hospital where a friend was waiting for a heart transplant. I saw first-hand that it was a grueling ordeal with no guarantees. He recently asked if he could do a guest post to encourage others to register as organ donors. Here is his touching, personal, and somewhat humorous account. For information about how to sign up for organ donation visit DMV.org.

Reflections of a Heart Transplant Survivor by Steve Suto

My purpose in writing this piece is to facilitate awareness and persuade you to sign up as an organ donor. November 2020 will (God willing) mark my seventh year of continued life with a stranger’s donated heart. I know only that my donor was under 50 years old, bigger than me, and a two-hour LearJet flight from somewhere to Rochester, NY. I never wrote a thank you to my donor, as his heart was given to me with no conditions. I hope those who were in the family of any organ donor will accept my gratitude.

I feel better thinking that I am alive because of some family’s humanity. There is no cause and effect yet I somehow have to reconcile the seemingly opposing thoughts that I am alive because of someone else’s tragedy mitigated by their humanity. These families allow today’s medicine to continue lives that would otherwise be cut short.

Medicine is part science and part art. Every prominent religion endorses organ donation as an expression of charity. My religious upbringing teaches me that we are made in our creator’s image. I believe, however, that God would not go out of His way to look like me. My only other way to trust this truth is believing that our Creator’s “image” is exemplified creativity and is reflected by our diversity. Medicine has created organ transplants. I believe Jesus forgives plastic surgeons. By now you might have figured out that I’m taking advantage of the fact that someone gave me the chance to return to my life with no conditions; even though more than one of my employer’s 360 evaluations point out that I‘m some kind of wise-ass.

Organ Donation Facts

Greatful and the “Grateful Dead”

I registered as an organ donor after an appeal between songs by Phil Lesh of “The Grateful Dead” when he thanked his donor for his extra time to keep playing music and he would be Grateful to sigh anyone’s donor card. This was in 2003 on a tour with Willy Nelson & Moe and featured Joan Osborne singing lead for the Dead. After Jerry Garcia’s death, Joan sang lead on songs that revived songs on hiatus traditionally sung by deceased bandmates Garcia and Pigpen McKernan. She gave more than these songs a second life for me. Dr. Doug Green & I trade music that we like back & forth but he is not like me, as I’m a self-described recovering DeadHead with no musical talent and Doug can actually play music.

When I first saw a New York State organ donor license plate that said Donate Life, pass it on I thought wow. They left that door wide-open knowing people like me are out there and we like to goose Murphy’s law. Inspiration and Phil Lesh’s appeal turned into a DeadHead’s inside gesture versus an offsetting socially mitigating statement. My license plate reads Donate life, pass it on, 420 4U become an organ donor; or translated, donate life, pass it on, “High Time” for you to become an organ donor. 420 is code for International Cannabis Day.

Legend says 420 evolved from the time of day two friends partook. This grew through their network of friends. Eventually, 420 was the time of day before any jam band concert fans got high. Thus my interpretation of “high time.” Why keep this for jam band fans only. Your awareness of 420 Day shows the next level of acceptance of this custom. National Holiday!? This plate using 420 for “high time” would not be acceptable in California. New York won’t let you even swear in pig Latin on a plate but they missed this one. Even though I might spend more time every year in my Florida condo, I remain a New York resident. I’m proud that I had that NY license plate years before my health deteriorated and I needed a transplant.

Organ Donor

New Life, New Heart

In my new life with a new heart, the greatest change I have made is to allow the effects of an artist to fully wash over me and engage all of the emotions I honestly feel. It’s no coincidence that so many traits like persistence, guts, love, and humanity have heart as a synonym. I am even more grateful that after my transplant I was able to be there and reciprocate & support my wife, Carol when she went through a health ordeal that included life-saving emergency surgeries.

Here’s how a transplant candidate went from a rejected heart transplant candidate to a transplant patient who walked the 200 yards back to the hospital’s transplant ward from the ICU within 36 hours of waking up from successful transplant surgery. Most transplant recipients spend a week or more recovering in the ICU. Every day since at some random time I suddenly experience profound gratitude to my unknown donor and his family. I hope this continues every day I continue to live.

To quote country outlaw Ray Wylie Hubbard, “any day when my gratitude exceeds my expectations I’m having a good day.” This sounds like something you learn in rehab. He once described a woman as “tougher than rehab”. He also, in turn, quotes his grandmother in his song Conversation With the Devil saying “some folks are saved because they see the light, others are saved because they feel the heat.” Incidentally, if I never got my transplant my tombstone would have read “It just doesn’t seem like Hell without You”. My friends & family who know me wouldn’t take offense. Thanks for reading and please sign up to become a donor and share this with your network.

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